Placenta Accreta Research
National Accreta Foundation is an organization of accreta survivors dedicated to using our lived experiences to make change for future moms. We are very interested in advancing research surrounding placenta accreta spectrum (PAS) and in helping you and your team understand and improve the placenta accreta patient experience.
National Accreta Foundation represents the placenta accreta patient and survivor community
Here’s some information about us:
Our board consists of engaged patient advocates who are all survivors of placenta accreta. We are skilled at representing the accreta patient community and have experience working with research and quality improvement teams to advance our shared missions.
NAF is a trusted resource within the PAS community. Our combined closed group network consists of as many as 10,000 women & families who have been affected by placenta accreta around the globe. We have a strong social media following of over 30,000 accounts across multiple channels that consists of patients, survivors, health care providers, academic institutions and journalists.
We have a story bank of over 800 patient stories from women and families who have been affected by PAS representing 47 U.S. states and 24 countries. We maintain a mailing list of accreta survivors across a wide range of locations and patient experiences who have expressed interest in participating in academic research initiatives.
NAF Has participated and been CREDITED in the following academic publications:
The Effect of Pregnancy Complications on Quality of Life with Placenta Accreta Spectrum
Quality of life and sexual function after a pregnancy complicated by placenta accreta spectrum
Mandy: A Patient's Story of Placenta Accreta Spectrum Disorder
Open Surveys or Awaiting Publication:
If you are representing an academic study on placenta accreta spectrum and are interested in collaborating with us, please fill out the form below:
National Accreta Foundation is a volunteer staffed and donation funded 501(c)(3) non-profit organization dedicated to placenta accreta advocacy. If you find our content of value, please consider making a tax-deductible donation to help us continue this work.