NAF Collaboration: Supportive Care Survey Study Recap
In fall 2024 National Accreta Foundation launched a survey in collaboration with the National Maternity Hospital in Ireland to explore the experiences of women who had a pregnancy complicated by Placenta Accreta Spectrum. Specifically, we want to find out if women were offered support during and after the pregnancy such as mental health counselling, physiotherapy/physical therapist and postnatal/postpartum follow up.
Thank you to the 155 members of our patient community who added their stories to our storybank and answered the call to have their voices heard by participating in this important project. In July 2025 the resulting study “Patient centered care for placenta accreta spectrum: Exploring implementation of recommendations based on reported patient and healthcare provider experiences” was published in the International Journal of Gynecology & Obstetrics.
In July 2025 NAF shared a social media campaign bringing attention to the findings of the study:
Highlight 1: Study Spotlight: Patient-Centered Care for PAS
“Patient-centered care for placenta accreta spectrum: Exploring implementation of recommendations based on reported patient and healthcare provider experiences” (Bartels et al., 2025)
Again, a huge thank you to our community members who took part in this global study. Your stories helped shape critical insights into how care for Placenta Accreta Spectrum (PAS) is being delivered—and where it’s falling short.
63% felt prepared for birth, but...
Many weren’t offered options beyond hysterectomy
Nearly 80% were given no educational resources
Patients reported being told not to research PAS. Others were left to search alone, scared and confused.
We can—and must—do better.
Highlight 2: Support Matters: Mental & Physical Health After PAS
From our study: “Patient-centered care for placenta accreta spectrum…”
Again, Thank you to our incredible community members who participated—you’re helping redefine what care should look like.
Here’s what you told us:
Only 44% were offered mental health support
60% were not referred to physical therapy
When support was offered, it made a difference—but often came too late
Partners were rarely included, and many felt overwhelmed and unsupported
Barriers like cost, availability, and awareness were cited. But providers are listening—and want to improve.
Solutions can be simple:
Offer resources early
Include partners
Create trauma-informed care plans
Thank you for helping shed light on what recovery really requires.
Highlight 3: Postpartum Care: The Missing Piece
From the study “Patient-centered care for placenta accreta spectrum…”
A final and heartfelt thank you to all who shared your PAS experience in our study. Your insights are powerful.
But here’s the truth: only 40% received postpartum follow-up with their PAS team.
Yet 96% of those who didn’t get it... said they wanted it.
Patients described feeling:
Isolated after discharge
Like their care ended too soon
Left without a point of contact
Misunderstood by general providers
Providers want to offer better postpartum care—but cite limited time, insurance coverage, and distance as barriers.
What helps?
— Telehealth
— Referrals to advocacy groups
— Clear post-discharge contact info
— Extending care beyond 6 weeks
PAS recovery doesn’t end at delivery. Let’s make sure support doesn’t either.
You can read the full text of the published study in the International Journal of Gynecology & Obstetrics: “Patient centered care for placenta accreta spectrum: Exploring implementation of recommendations based on reported patient and healthcare provider experiences.”
THANK YOU
to the 155 members of our patient community who added their stories to our storybank, had their voices heard and participated in this important project.
Thank you to the National Maternity Hospital in Ireland and Dr. Helena Bartels for making this collaboration possible.
This study is now closed, although National Accreta Foundation gets calls for survivor input like this often.
If you’d like to be invited to future opportunities like this, please add your story to our story bank via the button below.
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